Pranvera was a resourceful girl, who excelled in her studies and everywhere, until one morning when she was 13 years old, she felt that something was happening to her body. She remembers that moment in her life like this: âAfter many tests, I was diagnosed with a serious illness. There was a tumor mass in my spine. I was lucky, because it was non-malignant and would not recur after the operation, according to what the doctors said. I had already been lying down and was waiting with joy for the operation, because I thought that everything would return to normal. After the operation, only the pain subsided, but not my physical condition, my legs would no longer function as they used to. With the help of physiotherapy, the improvement was very slow, almost imperceptible. Over time, I managed to walk with great difficulty, with the help of crutches. My physical condition did not prevent me from getting an education, having a job and my family.â
For almost 10 years, Pranvera was cut off from school and from any kind of activity of life outside the home, and this was a very dark period, which she recalls with tears in her eyes: âIt was a very difficult 10 years for me and my family, we gave up. I could not imagine that I would have a life of my own, until I started to leave the house, to get to know people like me. In 2000, I learned to drive and managed to have my own car. This was the happiest moment of my life, because I was now able to go out. I resumed my life where I had left off, I finished the eighth grade, then high school part-time. After a 3-4 year break, I enrolled in the Faculty of Social Sciences, branch âGeneral Psychologyâ. In 2019-2021, I will pursue my professional masterâs studies in Urban Social Planning and Human Resources.â
In addition to the year 2000 that gave her the freedom to move, after she learned to use her own car, another unforgettable year in Pranveraâs life is 2005, when she met her husband Elton. Since he was little, Elton had been labeled âthe balcony boyâ, because he stayed locked up at home all the time and watched the whole world outside from the balcony. He suffered paralysis of his lower limbs when he was 18 months old, as a result of polio. He has used a wheelchair all his life. Pranvera tells us the circumstances in which she met Elton:
âIt was 2005, when a group of young people came to the Elbasan spa area, consisting of boys and girls with disabilities. I knew the organizer of the project and she knew that I lived in that area, so she invited me to join the group for the last 3-4 days. Among them was Elton, a cheerful boy and in harmony with everyone. He was a cheerful guy and it seemed like he just wanted to celebrate and enjoy the whole time without worrying about the opinions and prejudices of others, which were very common in the area where we lived. Elton made my stay enjoyable for those 3-4 days. It seemed to me as if I had known him for a long time. Then, in July, through a foundation, we went to a summer camp with Elton and other people with disabilities. During this time, we had the opportunity to get to know each other better. In Elton I saw a very precious human, I appreciated the sincerity, closeness and love he gave to others. This made me see him differently and give Elton confirmation of his liking for me.â
Thus, the two began a strong bond of friendship and mutual liking, where they shared together, not only the difficulties they encountered in everyday life, but also the feelings of great love they had for each other. After four years, they thought of strengthening their bond even more through cohabitation. Although Pranvera was a disabled person herself, her family did not initially welcome this relationship. She says that all her family members were skeptical about this relationship, and her mother had even told her: âat least he should use crutches like youâ. After many discussions and efforts, Pranvera received the familyâs approval to cohabit with Elton in Tirana, because he was employed in the capital city.
She admits that she herself was not entirely sure about this big step, not because she had doubts about her love, but because she was afraid of the difficulties caused by the inability to move. âBeyond everything or prejudice, in May 2009 we decided to start this journey, without knowing where it would lead us. The love we had for each other was enough for us. Over time, the first difficulties of life as a couple faded away, because we accepted that every day of our lives would be a challenge and we would get through it.â
Understandably, it was not easy to find information about the sexual and reproductive health of people with disabilities, because this topic was not talked about by anyone in society.
Today they have been living together for 15 years and have successfully managed to have an independent life in all senses. They have overcome all the doubts and skepticism of their family that they could live away from them and without their support. They are even proud of the achievements of Pranvera and Elton, because today, after many sacrifices and with many years of savings, they have managed to buy an apartment of their own.
They have harmony, love and everything else, but they also have a regret, they did not manage to become parents. Pranvera says that âduring the first years of cohabitation, we were afraid that our child would be bullied at every stage of his growth, due to the fact that he was born to two parents with disabilities. But after almost 10 years of cohabitation, and with the encouragement of our family, who told us that we should have a child, because life takes on a different meaning, we decided to try through the IVF procedure. Within a year, we did two processes, but the result was negative. We were disappointed, we were very upset, because we started dreaming about parenthood, but even this was a test for us. We normalized emotionally and accepted the fact that we cannot have children. According to the imagination, it would have been nice if it had happened, but we are not missing anything, as long as we never had it. We love and adore our life at this point where we are.â
And while she lives peacefully and happily for the achievements they have achieved together with Elton, Pranvera also gives a message, not only for people with disabilities, but for all people in general: âTo dare and know how to manage their lives with the little good things they carry within them. To dare to try something different, even if they know that 99% will fail, they will still provide a plus experience in their lives. There are no achievements without challenges, life is beautiful with its ups and downs, life is beautiful with all its colors.â